E-Petitions

This petition is now closed, as its deadline has passed.

We the undersigned petition the Prime Minister to recognise that the diagnosis and treatment of Pernicious Anaemia does not take into account the individual needs of patients and that the patient experience of managing the condition is often affected detrimentally because of this. We, the undersigned, demand that the diagnosis, monitoring and treatment of Pernicious Anaemia be centred on the needs of the individual in order that the dignity and rights of sufferers of the disease be protected. More details

Submitted by Martyn Hooper of The Pernicious Anaemia Society – Deadline to sign up by: 31 March 2009 – Signatures: 489

Petition update, 05 June 2009

You signed a petition asking the Prime Minister to "recognise that the diagnosis and treatment of Pernicious Anaemia does not take into account the individual needs of patients and that the patient experience of managing the condition is often affected detrimentally because of this. We, the undersigned, demand that the diagnosis, monitoring and treatment of Pernicious Anaemia be centred on the needs of the individual in order that the dignity and rights of sufferers of the disease be protected."

The Prime Minister's Office has responded to that petition and you can view it here:

http://www.number10.gov.uk/Page19490


Prime Minister's Office

More details from petition creator

The treatment of Pernicious Anaemia in the U.K. centres on the patient receiving an injection of Vitamin B12 every three months. Many sufferers of Pernicious Anaemia need more frequent injections in order that they can enjoy an average quality of life. Some sufferers lead a normal life for the first month after their injection but live in a 'fog' for the next two months. A great number of such patients have suffered needlessly for forty years. It is impossible to overdose on the Vitamin as it is a water soluble protein that is excreted in urine. The undertreatment of patients is therefore unecessary and is the subject of most complaints and enquiries to the Pernicious Anaemia Society.

Current signatories

Martyn Hooper, the Petition Creator, joined by:

  • Mr Partis (petitions.pm.gov.uk/tombaker/)
  • Jonathan Patchett
  • David Connell-Smith
  • Claire Constable
  • Marre Dafforn
  • sue grant
  • Cheryl Hooper
  • Angela Cousins
  • Vinod Devalia
  • Peta Shields
  • Wyndham Geen
  • Hilary Geen
  • rae michelle lund
  • kevin lund
  • Kevin C Byrne
  • Norman Thomas
  • Alex Critchlow
  • David Critchlow
  • Anthony Wilson
  • mel taylor
  • Suzanne Silver
  • Kingsley Silver
  • Martin Brailey
  • Alison Bloomfield
  • Alison Ridsdale
  • Anne Crisp
  • Christa Roberts
  • mathew vincent
  • Jacqueline Dunn
  • graham mark kenning
  • Rose Davey
  • Michael Stevenson
  • Evelyn Hood
  • Judith Dickinson
  • gillian slade
  • DENISE HOLMES
  • Naomi Renwick
  • Sarah Cole
  • Alison Hodges
  • Joy Allton
  • Jan Hall
  • mrs sonya eggleton
  • adele forrington
  • Lauren Cotton
  • sian roberts
  • june diane andrew
  • Mira Sheridan
  • Louise Watson
  • siobhan ellis
  • Alicja Wojtulewicz
  • Ingrid Fell
  • k.hewson
  • samantha gregory
  • Margaret Galvin
  • Christine Donald
  • EMMA DARE
  • sonia martin
  • Amanda Graham
  • Margaret Browne
  • Sandra Miller
  • Rachel Pearson
  • Nick Pearson
  • Joanne Murphy
  • H.A.Humberstone
  • Mark Tweedale
  • Laura Shaw
  • Susanna Hall
  • Caroline Stephens
  • Anista Emmanuel
  • Robert Graham
  • Diana Peek
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  • Kate Cubbage
  • Alexander Cubbage
  • sally struthers
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