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More details from petition creator

At present there is no cure for this often fatal disease that affects so many children and adults.i have recently lost my baby who was 4 months old who had an horrific death and i know other babies who have died in this way. I feel the goverment needs to put more money into research to help find a cure for this

Current signatories

tamara strangward, the Petition Creator, joined by:

• martin keane
• hayley prest
• Rowland Dicker
• Dave Phillips
• Andrew Alexander
• Ryan Taylor
• Cheryl McBain and Daniel McBain
• julie jones
• Theresa J. Main
• Alison Cleeve
• sarah bain
• Claire Taylor
• Lynne Hill
• Trevor O Reilly
• Cathlene Slade
• Jean Fullerton Shepherd
• Michaela Cashmore
• Tracey Moulder
• Erick Harrison
• Hana Al-Fathi
• Miss Sophie Rowe
• Samantha Evans
• nichola maddison
• TINA MARIE ROSS
• lindsey lewis
• Annette Patmore
• Rebecca Beacham
• Rebecca Evans
• N Hunt
• Mel Luck
• Joanne Elms
• Neil Patmore
• sally worne
• P Houghton
• Lorna Faichney
• Kerry Dwyer
• lynwen howells
• Jessica Nicholls
• Nathan Perkin
• Ann Hunt
• Helen Grohmann
• Laura Kenton-Weeks
• lauren tones
• Michaela Pritchard
• Sarah O'Toole
• joanne sheehan
• cindy Ashbridge
• s luke
• Jan Machin
• patrick morris
• Amanda Rowe
• Abdullah Rhodes-Taylor
• Christian Crowe
• shaun brown
• shirley williams
• Tom Gray
• colin booker
• r whitehouse
• Vittoria Franchino
• darran mogridge
• Doreen Davies
• Kate Davies
• Sarah Havard
• debbie morris
• gerard keane
• lee morris
• Victoria Woodard
• James hadley
• Helen Flaherty
• Jennifer Groves
• Natasha Kelf
• Matthew Gallop
• sarah Hugo
• Dom
• Peter Buttigieg
• Lynsey Noguera
• Claire White
• michelle dudley
• Denise Taylor
• Tom Crisp
• Julian Gale
• Leigh Amos
• Wendy Bates
• Stella Curran
• Jane Lightly
• vicki read
• julia mcnulty
• Alison Manning
• Lehanne Jones
• Helen Ellis
• KIRSTY TURNER
• carol williams
• Susan Williams
• Graziella Cheeseman
• Chantel Sharp
• Clare Cox
• Sharron Hardwick
• Margaret King
• michelle little
• lorraine barnett
• carol stening
• jude snowdon
• Elicia Rivera
• Anne Marie McGrath
• Kirstie McBurnie
• lindsey mc dowell
• Angel Stephens
• Philip Stephens
• Sharon Tyres
• kara ellard
• lynne mcconnell
• Richard Mccalmont
• karen graham
• lisa reid
• steven dobson
• tracey neilly
• Jenni Meighan
• charlene clarke
• Amanda Charleton
• Colin Snoddon
• karen fletcher
• Paul Cairns
• Joanne Hanna
• Elaine Wetherall
• Diana Taylor
• Carl Davies
• Gerald White
• Karel
• Pembrokeshire Phones
• Donna Dowzell
• jeanette jacobs
• Emma meyrick
• Patrick Loughnane
• Ben Green
• Kirsty Trotter
• Glenn hunt
• marnie seabrook
• Helen Keelty
• claire keelty
• karen forster
• linzi hall
• faye jenkins
• laura scott
• helen rees
• emma Mccurdy
• lindsey bridges
• Elaine Coulson
• Nicola McDonald
• alison meredith
• Naomi Bennett
• helen morrison
• CLARA ANSELL
• joanne wilkinson
• Dawn Moffett
• Teresa Cottingham
• elizabeth keating
• kirsty mallon
• Stephanie Rose Garland
• kimberley millar
• amanda holmes
• Kirsty Drewett
• jillian hillary
• Loren Crutchley
• suzanne hunter
• Alison Bailey
• Lydia Keill
• lindsay trotter
• louise addison
• Claire Doyle
• kelly scott
• victoria wadsworth
• david south
• liz carlyon
• Gemma Chapman
• nicola pearson
• Lee John Wakefield
• mark nichols
• Hannah Beard
• Genna Mills
• Rebecca Rogan
• sue johnson
• Stephanie Bushell
• zsa rostron
• zoe dickinson
• philip sheppard
• jane dunn
• matthew gleed
• Paul Davidson
• sarah charles
• Rachel Carter
• michelle lister
• jodie collins
• Rachael NIchoslon
• Emma Tidy
• Anne Hansen
• abigail hallett
• Sue Cotterell
• Clare Hallett
• chloe josey
• sarah henton